As a member of the All-Party Parliamentary Group on Brain Tumours, I was really pleased to give my support to this new group set up in St Helens.
It’s clear from the fantastic turnout of people who attended the launch of the St Helens Brain Tumour Support Group that this is needed in our borough. This collaborative project set up with assistance from St Helens Public Health and The Brain Charity will be a valuable link for those in St Helens dealing with this difficult diagnosis in all its forms.
Recently, the Brain Tumour Charity has been raising awareness of the challenges they are facing around the cost of data sharing and its impact on research.
The Brain Tumour Information and Analysis Network (BRAIN) has been created to improve people’s lives and outcomes through research but its facing a large financial outlay in order to access the available data, its important ensure that this pioneering project is not put at risk due to high costs.
Well done to all those involved and a special mention for my friend and St Helens Labour Councillor Jeanie Bell who has been heavily involved in this initiative, and to Claire at Momo’s Coffee Shop who doing such fantastic work in the community.